Showing posts with label milestones. Show all posts
Showing posts with label milestones. Show all posts

Thank you for listening

Thank you again to everyone who has read, shared and commented on the blog post I wrote detailing my complaint to Wolverhampton's New Cross Hospital about the way both Neil and me were treated days before he died.

I've had phenomenal support since penning this intensely personal story and last week appeared on the BBC News Channel, BBC One O' Clock News, ITV lunchtime and evening, and Sky News, who have kindly provided me with the above clip. I also spoke to BBC Radio Five Live and my audio was shared with various regional BBC radio stations. The Independent wrote an in-depth article and leader column about care for the dying and I've done a very sensitive interview this week with the Wolverhampton Express & Star. I had to turn down approaches from other national news programmes as I just couldn't be in two places at once.

This was because my blog post was picked up after being shared on social media by Joe Levenson from Dying Matters during their 'you only die once' awareness week. A report from the Royal College of Physicians said too many people dying in hospital were not being cared for as well as they could be. This was my opportunity to be heard, and thanks to Joe, I grabbed it with both hands. You can see there's a lot of emotion as I speak, my face is red and I only have to be asked a single question before I launch into recounting our family's turmoil, hardly drawing breath.

As you can imagine, for someone who wrote a blog post wanting just to be listened to, I never suspected I'd end up speaking to millions through national media. It was a cathartic experience for which I'm immensely grateful. Each and every journalist in touch has been hugely respectful.

I have plenty more I want (or need) to say about being bereaved and when I don't have a big pile of work to do, I hope to be back blogging.

Thank you.


So what happened in Africa?


It has been a long time since I have blogged here. There just haven't been enough hours in the day. But I have been itching to share what we got up to in Africa, how it went, the difference it has made to our family and to say another massive thank you to everyone who helped us get there with their kind donations.

In short, since losing Neil, I have never felt so alive as the time we spent with our fellow volunteers and the youngsters we met. Here's our story:



Watching my daughter Melissa set off to walk four miles carrying a bed for a nine-year-old orphaned African girl who slept among rats on the floor, I cried big fat tears of pride.

We were doing this in Neil's memory. I hope that one day there will be an element of our involvement that I can put his name to as a lasting reminder for all to see of his decency and compassion.
I find it amazing that such an unassuming, modest group of people should make such a difference and honoured to be allowed to walk alongside them. It's hard for me to imagine that mothers have so little that their newborns are sent away from hospital wrapped in newspaper but mind-blowing to consider women in my village are easing this burden.

Melissa trekked for hours along a dirt path to deliver the bed we had built together, while me and her sister Emily carried another to its new, less faraway but equally dilapidated home.

We were in a remote South African community fittingly called Share, in a region called Bush Buck Ridge.

Our mission was to start to help some of the continent’s poorest children. These youngsters had lost one or both parents to HIV and Aids or were devastated by a more sudden death.

Now they lived with their grandmothers, themselves often child-like through the effects of trauma, or a toxic combination of no education and deteriorating faculties.

As young brothers and sisters woke to the sight of their parents’ crudely etched graves in the heat and dust outside their bedroom window, facing hours of chores, there was little time to be a child.

We were helping a dedicated team of local women offer the children hope, through food, education and healthcare, with a small charity called Hands atWork.

The amazing women caring for these children – bringing them one simple meal a day -- and attempting to mend fragmented families had very few material possessions. But driven by a deep faith, they brought love by the bucket load. Each day their voices filled the air with soulful songs of celebration, giving thanks for the community.

The tiny British charity taking us there is called Link4Life – inspired by an aim of forging long-standing meaningful, relationships, working together over a lifetime to bring real improvements.

They asked us to put together beds for 12 children of the 50 they are able to help from their centre, and to help build a ‘long drop’ toilet so little girls and boys no longer had to crouch behind the centre’s walls.

We were part of a 14-strong team throwing ourselves into the tasks with aplomb. Colleagues from Link4Life had already painted the centre, set up a fence and embedded colourful tyres as play equipment.

In these still bleak surroundings, I was upset by the scale of deprivation. Yet my wise fellow team members could see how things were improving and thankful for the steps taken so far.

Our job was to cuddle the children, to play with them and show them love. We were not there to pity or point and say: “Oh how poor they are.”

There was no international marketing fanfare to throw Western money at these children  and impose our own solutions, we were there to listen to what they genuinely needed. Each day we listened and got on with it.

But they were also helping mend us.

My tears came not only from pride but from waves of understanding and grief. My beautiful brave girls getting blisters carrying the beds and laughing with the children in the playground, understood their heartbreak. They had lost their dad, my gorgeous husband Neil, just over a year before we found ourselves in Share.

The care workers and our companions from our local village community of Cheslyn Hay in Staffordshire told us they would be thinking and praying for us too, that we needed their love.

Having spent months attempting to come to terms with our grief and facing the future without Neil, to meet so many bereaved children and see the pain in their eyes was a cathartic and humbling experience, especially when their care workers recognised the same agony in us. Yet as we witnessed the difference we were making, since losing Neil, I had never felt so alive.

The reason behind our visit was uncomplicated -- to meet the children, be at their side and help tell their stories.

As the three of us made a hash of sweeping a grandmother’s yard during a home visit, he would have laughed fondly as she tutted and told us to do it again.

We also had the opportunity to visit a hospital in Durban, where babies are now sent home clothed, rather than in newspaper, thanks to a group of knitters, some of whom are just streets from where we live. This is the Baby Bear project.

As I helped hand over freshly knitted clothes to women in the last stages or of pregnancy or hours after they gave birth, I sat and chatted with a young mum of newborn twins. Rosie, 25, from a nearby village, who told me she would name one of her daughters after me.

Again, the tears flowed. This time I was crying with joy.


At a banana plantation where an international team of nurses ran a basic health clinic, I held a young girl’s hand while she underwent traumatic treatment to Impetigo on her head.

The festering lesions on Virginia’s scalp remained agonising as her aunt had refused to give her the medication needed. Now the sores were so serious, they were being cut out with a blade. There was little pain relief. As I sat and held her fingers in mine, urging her to squeeze my hand to take the pain away, she was so unused to anyone showing her such basic care, she didn’t know what to do and her wrists remained limp, her hands dangling as she screamed in pain. I will never forget Virginia, I ran to our van to get her some boiled sweets so she could somehow benefit from a sugar rush and take her mind off the stinging blade.

I’m not a religious person but could not fail to be moved by the dedication of those who used their beliefs as a reason to roll up their sleeves to see their hands at work among such need. Nobody was preaching,just getting on and helping in desperate circumstances. Perhaps the most moving part of our visit was spending a Sunday morning at a church built from sticks, with fabric oddments adorning the makeshift walls as underfed children in their best dresses sang hymns beautifully. Outside they played with toys fashioned from bits of old wire. It was heartbreaking but uplifting at the same time – you couldn’t help but be in awe of these children’s spirit.

My colleagues from the UK church said they felt God was there that morning. I couldn’t disagree, but Neil was there too I told them. Now, as I reflect on our time in Africa, my tears have given way to renewed commitment to help girls like Virginia.  There has been guilt since we returned as we squabble over which pudding to buy in the supermarket or which reality TV shocker we are going to settle down in front of. We don’t know we are born.

Still, my tears have given way to smiles as I think of the children we helped, including my own and a new little girl called Linda. 

We have a link for life.

How you can help

The Baby Bear project is looking for more knitters. Please leave a comment here if you can spare the time to get involved and possibly help clothe newborn babies or email me on linaitchison(at)gmail.com.

A direct debit of £15 a month feeds one child at Share. Please visit www.edscouriers.co.uk/ for more information. 

I've also included a Donate button in the top right hand corner of this blog to help me send money in a monthly direct debit. 











 




Dear bloggers, I'd love your help

Since losing Neil I've slunk away from life. I used to feel that I was part of a lovely online community of parent bloggers but lately my presence has been sporadic and jumbled. I really haven't shared much online about how we've been doing -- give or take the few posts here.

As well as doing my best to get through everything that has been thrown at us and sorting out all a lone parent needs to get on with, I've been hiding. I have watched Homes under the Hammer and Pointless until I can tell within seconds of the opening credits whether it's a repeat. The same goes unfortunately for the Millionaire Matchmaker. Did I really just say that out loud?

I've had lots of ideas about things I would love to do, stuff I would love to write, but I haven't quite got there.

Now I am finding my focus again. It's just two and a bit weeks until we head to Africa and I would like to throw myself hook, line and sinker back into the parent blogging community and ask for help.

Here's what we are up to:

In loving memory: our visit to to South Africa


Please can you help?

Here are three ways you can:

You could donate

I still need sponsorship to help fund our journey. I've been carbooting (is that a word?) and eBaying (that can't be) like mad to pull money in and am hugely grateful for donations from all the kind individuals who have contributed so far.

But I wouldn't be giving it my best shot if I didn't make one last shout out for support. Thank you so very much if you can donate, it really is appreciated. There is no minimum amount, every little helps. Thank you so much.


You could send me some old clothes

Seriously. Do you have any old stuff that you just don't need any more that you have been thinking about recycling but not got around to it? I will very happily take it off your hands -- whether it's for kids or adults. Please email me (linaitchison at gmail dot com) if you would like to send me even just a single garment, and I will send you my address. I can make use of these, taking some over to Africa, as we can leave the clothes behind when we come home, or by taking them to Cash for Clothes before we go to help fund the charity. If you email me, I can explain more. Thank you!

You could buy a copy of my book on freelance writing at a knock down price

I'm selling a small number of my book, called Freelance writing, straightforward advice from a woman who knows (such a modest title, I know, I know) for just £7 to include postage and packaging. The RRP is £9.99. If you would like one, please click on the donate button and when you get through to the actual donation part, add a little note that you would like one of the books. Or please email me after you have donated to let me know you would like a book -- thanks a million.

It would also be wonderful if you could look out for my posts when I'm back and help share the children's stories.

Thanks so much for reading.

Sometimes it's okay not to be okay

I can't remember which kind soul once told me this.

It was in the days I was blogging about mental health, having worked with a branch of Mind.

Now I have found myself reflecting on this simple yet striking sentiment many times in recent weeks.

I have been having the most vile flashbacks to things that happened to our family and feeling overwhelmed by sadness. My memory continues to be very problematic. This has made my usual daily routine of writing and looking after customers, almost impossible.

Being keen to continue at work has created more problems than it has solved. It's a bitter pill to swallow.

I so want to wave a magic wand, to feel okay, to live life to the fullest for me, my children and my lovely Neil, and find it very hard to accept that it's not possible. So I end up beating myself up for being useless. This has to stop.

Last night as I lay in bed, memories cascaded through my mind. But they were happy memories. This has to be a step forward. I have been trapped a little in bad, bad memories, genuine, aching trauma that my mind and body has struggled to process.

After an initial burst of getting on with things at work and declaring I was now going to be 'braver' in business as a result of my situation, I have come to a grinding halt.

Unfortunately (or fortunately, I can't make my mind up which) medical professionals agree. I am clear and they are clear, that I'm not depressed, but I continue to feel anxious and invent negative scenarios purely through stress. My GP sent me to an emotional well-being service (lovely name, so much better than mental health) where I burst into tears at the start of the session, when the question "Who do you live with?" was the trigger. It didn't take long to be told I was suffering from Post Traumatic Stress Disorder.

People who care about me asked what happened next and how this will be treated. It makes me laugh that actually I can't remember! I think I'm on a waiting list.

Meanwhile I fight every urge that says PTSD is a load of nonsense and urges me to get a grip.

I've also been diagnosed with Type 2 diabetes, following in the footsteps of close family members. My high blood sugar levels have affected how tired I have been feeling and I'm on medication.

This makes me feel crap too - I have been overweight for far too long. But the tablets are working and I am starting to feel more alert. The connotations of laziness and greed that lie behind a Type 2 diabetes diagnosis inevitably play on my mind but I have to be positive and optimistic about my health. For me and my girls it's imperative, now more than ever, that I continue to lose weight (I am a good two and a half stone lighter than I have been.) I don't want to stay on the medication long term and have already significantly lowered my blood sugar through a change in eating habits.

So often I have dished out advice, to family and friends that they need to be kind to themselves.
I need to do the same.

I've been told everything I'm doing, including work and going on holiday is a distraction and that I need to grieve properly. "Shut the door and cry," were the exact words.

So that's what I have been doing. My head feels like it's full of candy floss. 

I've also booked some complementary therapy. What would I say to a friend who has been through all I have? I'd say give yourself a break and stop judging yourself so harshly. Give yourself permission to take time to heal.

Grief is something that has to be let in properly to then be let out, this I try to understand. When I think about what I'm still seeing, I have to acknowledge overcoming that needs strength. But that strength means being strong enough not to pretend to be okay. My neighbour tells me even being upright when faced with such pain is an incredible achievement. 

I need to start to believe her.

It's okay to not 'get a grip' or 'get on with things' or pull myself together sometimes. I am doing my best and that will have to be good enough.

Thanks for reading. 

This time last year

Tucking into mouth-watering seafood in a plush Welsh hotel restaurant, Neil beamed with happiness and pride on our twin daughters’ 13th birthday.

We watched peacocks strut past the window.

"Why do they have those colourful feathers?” asked our daughter Melissa. Neil smiled and explained why the birds fanned their blue-green tails.

“Don’t you love the way Dad knows this stuff?” I laughed to Melissa and her twin sister, Emily, savouring our meal at Ruthin Castle, Denbighshire.

It was a fantastic night.

Our enjoyment was made all the better because our stay was part of an expenses paid trip as guests of a local tourist organisation for our family travel site Have a Lovely Time. 

I wrote in my review that when you think of a weekend away with the family, North Wales Borderlands possibly isn’t somewhere that first pops into your head – as there’s no beach in paddling distance.

Taking two teenage daughters and hoping to keep them entertained all weekend can be difficult at times, wherever it is. But this area was jam-packed with adventures, I said. I added that the luxury that we stayed in was brilliant and provided us with some precious memories to treasure.

Little did I know how much I would want to cling on to those memories. 

We stayed our first night in Celyn Villa, a lovely little B&B near Holywell, with the breathtaking Clwydian Hills and Moel Famau as a backdrop.

Pauline and Les who run the B&B really made a fuss of us, with balloons, cake and chocolate  for the girls, as well as preparing a succulent steak dinner.

Wherever we went we had a standing joke about how a posh breakfast was the best thing about our stay. But breakfast time on our latest trip brought a new worry.

Neil was in pain. He feared he’d hurt his back playing golf.

We were supposed to be climbing nearby Moel Famau. When Neil said he couldn’t manage it, I knew things were serious. As our girls ran ahead, I huffed and puffed my way up and took in the wonderful view.

Then tears came, I was so worried about Neil and what on earth may have been wrong.

But I had no clue what life had in store and how cruel it could be.

Two days after coming home Neil was finding it hard to breathe. We were sent to New Cross Hospital, Wolverhampton.

That's when our nightmare began. Neil went through so much and we were there with him for every step. It's too painful for me to write about and I am still getting flashbacks.

This year, as our girls approach their birthday, it's five months since we lost Neil. I am inconsolable that he isn't here to see his beautiful girls on their special day and besides myself with sadness that they have only known their amazing, loving, decent dad for 13 years.

I am doing my best to look forward to all we have planned with love and hope and to keep going day by day.

But it's not easy.

Thank you for reading.